First OT Session

Yesterday we had our first meeting with Abby's new occupational therapist. She was FANTASTIC. She is a Mom of a special needs child herself and has suffered the loss of a child shortly after birth due to a genetic mutation. As odd as this sounds knowing that she has dealt with some of the issues we deal with endears her to me. She was so energetic and so open about her own family experiences. She was so wonderful with the girls (BOTH OF THEM!) and was a breath of fresh air after our ST experience.

We focused a lot on Abby's feeding issues. Because of her sensory issues she tends to stuff her mouth full until the point that she cannot chew. It's partly her weak chewing muscles and partly seeking sensory input. Spicier foods will help a little but we have some great strategies to work on. Hopefully we'll be on our way to self-feeding and using utensils!

We also started working on her flapping, arm and foot twisting and rigidity. I think the OT is going to work so beautifully in conjunction with her PT.

Tomorrow morning we are headed to the hospital early for her high res. MRI. She has to be sedated so she has to fast. I hate having to try to hold her off with no food. She is an eater so it isn't easy. She can have jello and juice up until 7am so we'll get her up early to load up on those things. We're just praying that this MRI yields a lot of great information for the neurogenetics team so they know what genetic tests to run. Fingers crossed...