I feel so lucky to have such amazing readers. I got two great posted comments from readers yesterday and I want to address them both. The first asked for my list of the most amazing (and by amazing I mean dumb) comments and questions people have asked. I am working on that post.
The second question was when you meet someone in public (on a playground, at the store, etc) with a child with special needs what do we parents of special needs kids respond to the best. This is such a terrific question. If people knew how to react I think they would do it. I don't think people say or do stupid things because they are mean I think they just plain old don't know what to say.
In our case it is fairly obvious that my kids have special needs. Obviously Abby's are greater but people also have a lot of questions about why Gracie can't talk. Abby's needs are more visible because of her size, her head size, her veiny head, her motor, her ataxia and the extra help she needs. In my experience it is the children who react the best to kids who are "different". They will walk right up, take a look, smile and say something like "how come she can't walk so good?" Maybe some people would see this as prying but I love that kids don't try to ignore the "elephant in the room".
So for me, I appreciate it when people can either treat my kid the same as everyone else (without being obnoxiously patronizing) or they just come out and politely ask why she has trouble. It really doesn't bother me when adults say something like "she obviously needs a little extra help, why is that?" Yes, some parents of special needs kids might be put off by this but a lot appreciate the honestly. The nicest is when people treat her just like her sister or any other kid. When they smile and talk to her and see her for who she is. Kids with special needs are JUST KIDS. And their parents... JUST PARENTS. We don't see our kids disability most of the time. We don't see differences or labels or diagnoses. We just see our kid. That's pretty much what we want the world to see.
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